Tetra/Pentasomy X Information and Support Links

If you know of an information or support link that would helpful to families, doctors, or researchers of Tetrasomy/Pentasomy X children, please email the webmaster. Thank you!

Support Links For Parents

Chromosomal Disorders Forum - Tetrasomy X

Support Groups for Chromosomal Conditions

MUMS - Parent-to-Parent Matching

The Resource Foundation For Children With Challenges - Including parent-to-parent matching

N.O.R.D. - National Organization for Rare Disorders

Alliance of Genetic Support Groups

Unique - Rare Chromosome Disorder Support Group

Birth Defect Research for Children

KidsHealth.org - A. I. DuPont Children's Hospital

Contact A Family - Chromosome Disorder Support in the U.K.

S.O.F.T. - Support Organization for Trisomy and Related Disorders

Exceptional  Parent Magazine Online

  International Rare Disease Support Network

Wisconsin Family Assistance Center for Education, Training, and Support (WI FACETS)

Special Needs Family Center - Southeast Wisconsin

Parent to Parent of New Hampshire

National Information Center for Children and Youth with Disabilities

Technical Assistance Alliance for Parent Centers

Medical / Technical Information Links

Education / Learning Disability Links

International Links