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Mission Statement of the Tetra/Pentasomy X Support Group
The goals of the Tetrasomy X
/Pentasomy X Support Group are:
-to comfort, console and
support the girls and their families affected by these conditions from
diagnosis to daily life.
-to recognize the need for
early intervention in speech, physical, and occupational therapy.
-to recognize the rich quality
of life that can be achieved.
-to share the joy and
happiness these special girls and women bring to our lives.
-to educate and inform the
medical community and the world of these conditions.
-to provide a network of
compassionate friends who will empathize and understand what you are
experiencing.
-to provide hope. Though
these conditions are rare, you are never alone.
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